Thursday, October 11, 2007
Von Willebrandes Disease- The Disease That Isn't a Disease!
I looks like Drew has Von Willebrande's Disease. Funny... it's not really a disease. It's more just a condition, a way of being. So, where do we go from here? We have another appointment with the hematologist on Monday. We are doing a drug trial. The drug is called DDAVP. It corrects the problem in a lot of people with Von Wille's. We have to draw blood, give the DDVAP and then draw the blood again to see if it improves his condition. If it is effective, we can use it before surgery to prevent bleeding problems. I am hoping we walk away from the hematologist on Monday with some answers. I just want to get the go ahead for surgery! We really need to get this done! At least now we have had the chance to investigate Drew's tendancy toward bleeding and hopefully fix it for this and future surgeries! I will be adding some links to info. on Von Willebrande's Disease to my long list of helpful links for those of you who want to know more!
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2 comments:
So at our clinic we give DDAVP (desmopressin) occasionally for people with VWB before their surgery. We've also done the "trials" to see if it helps too. We only work on adults (lucky for me...remember how much I enjoyed my peds and mother baby rotation????) Anyway, it can help and I hope it helps Drew!
http://www.readysetmom.com/readysetmom/2007/09/a-bedtime-song-.html As for the mom rant set to music... where did you find that? and who is she? She's marvelous!
I thought you'd appreciate this dad I found. Enjoy.
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