Karin Dent- My New Best Friend

Ah, happiness. I got a call two Wednesdays ago in the afternoon (shortly after my last post!)from our genetic counselor, Karin Dent. She starts by telling me how sorry she is and saying that she had to call back as soon as she got my message because of everything that had happened leading up to this call. We talked about Drew and how fitting the diagnosis of VCFS was. I told her we had been researching it and we felt it fit him perfectly. Then, she took down all my concerns- all the things we saw in Drew that fit the syndrome. She told me she would get me an appointment from the scheduling lady (who had already gone home) and I should be getting a call back. The next day, I get a call from Carol, yes, blacklisted Carol, how cheerfully tells me that they have an appointment for Drew on Spetember 18th. There now, Carol, WAS THAT SO HARD! A little while later, I am in contact with the plastic surgeon's nurse. By the end of the business day, I have an appointment for Drew with a hematologist on the 12th of Spetember. So, what has this taught me? Being the Dreaded, Horribly Obnoxious Mom really pays off! In all seriousness, I have learned that NO ONE will fight for your child like you will and YOU WILL HAVE TO FIGHT! But, it is worth being the scourge of the medical world if my son gets the treatment he deserves.